Condition guide · primary sclerosing cholangitis

PSC (primary sclerosing cholangitis): find a liver specialist who really knows PSC.

PSC is rare, and many doctors see only a few cases. We find the hepatologists near you who follow PSC patients, the transplant centers and the trials — each checked on their current hospital or university page (and we tell you when a site couldn't be checked) — and tell you exactly who to call and what to ask.

Check if we can help — $149 only after we confirm

$149, one time. You pay only after we confirm we can cover your case · report by email within 3 business days of payment · 14 days of email questions included.

Not helpful? Tell us within 7 days. We redo the research free — and if it still doesn't help, we refund you in full.

Why the right specialist matters with PSC

PSC is a long-term condition. The specialist you pick now may follow you or your family member for years.

It is rare, so experience is uneven.PSC Partners Seeking a Cure, a US patient organization for PSC, estimates that about 1 in 10,000 people develop PSC, and advises making sure you are seeing a hepatologist or gastroenterologist experienced in treating PSC.
There is no cure yet — so research and transplant planning matter.PSC Partners notes there is currently no established treatment to cure PSC or slow its progression, and that a liver transplant is considered the only curative treatment for end-stage PSC. A specialist connected to clinical trials and to a transplant center keeps more doors open over time.
PSC rarely travels alone.Most people with PSC also have inflammatory bowel disease (ulcerative colitis or Crohn's), according to PSC Partners, and PSC raises the risk of bile duct and liver cancer. The American Association for the Study of Liver Diseases (AASLD) covers PSC and bile duct cancer together in its practice guidance — a reason to ask early how your care will be coordinated and monitored.

Sources (public, linked so you can read them yourself):

What your PSC report contains

A plain-English PDF built for one family — not a list of 200 names.

PSC, in plain words

What PSC is and how care is usually organized — hepatologist, IBD gastroenterologist, transplant team — so appointments make sense from the start.

2–3 PSC-experienced specialists, verified

Hepatologists who run a PSC or cholestatic liver clinic or have published on PSC — each checked on the hospital's or university's own page within days of your report (we tell you if a site couldn't be checked). Plus the closest option to home.

Transplant centers and trials

Liver transplant programs within reach of your state, how to get an early evaluation conversation going, and PSC clinical trials recruiting now.

Patient-community resources

PSC Partners and other foundation resources, support groups and conferences — the people who have been there.

Exactly who to call

Phone numbers, new-patient forms, referral rules, how to send imaging and lab reports, and a ready-to-send email plus phone script.

Questions to ask

"How many PSC patients do you follow?", "What is my monitoring plan?", "How do you work with my IBD doctor?" and "When should we talk to a transplant center?" — plus a one-page visit summary.

Page one of a sample WhichSpecialist report, marked 'Sample report — fictional patient': Your Specialist Report for idiopathic multicentric Castleman disease, prepared for a 45-year-old in Atlanta, Georgia, dated November 1, 2026. — Page 1 of our sample rare-condition report (fictional patient)

Read a full sample PSC report

A fictional 57-year-old in Columbus, Ohio with PSC and ulcerative colitis. The specialists, programs, trials and links are real and were checked on the date shown.

Read a sample bile duct cancer report

A different condition, shown only so you can see how one of our liver-care reports is laid out.

Who we are

WhichSpecialist is an independent research service run by Utku Güneysu (sole proprietorship) in Istanbul, Türkiye. We are not doctors and we never give medical advice — our job is to find the doctors who can.

Every specialist, phone number and link in your report is checked by hand, one by one, on the hospital's or university's own page. AI helps us search US sources first (hospital pages, published research, public data). No doctor, hospital or company pays us. Every email is read and answered by a person.

Utku GüneysuFounder · hello@whichspecialist.com

Find a doctor who has seen PSC before

Tell us the condition and your state. We confirm by email within 24 hours whether we can cover your case — you pay only after that.

Check if we can help — $149 only after we confirm

$149, one time. You pay only after we confirm we can cover your case.

Not helpful? Tell us within 7 days. We redo the research free — and if it still doesn't help, we refund you in full.

Questions

Is this medical advice?

No. We help you find and talk to the right specialists. We don't identify or confirm any condition and we don't recommend treatments — those decisions belong to you and your doctors.

PSC Partners already has a provider map. Why would I pay for this?

The PSC Partners provider map is a great free place to start, and we point you to it. What we add: we check that each specialist is still at that hospital and still focused on PSC, find transplant centers and trials near you, and give you the exact phone numbers, referral rules, email and questions for your state.

Can you help if the patient is a child?

Yes. Choose "My child" in the form. We then look for pediatric hepatologists and children's liver programs with PSC experience.

Do you need my medical records?

No. "Primary sclerosing cholangitis" and your state are enough to start. If a detail matters — for example small-duct PSC or an IBD doctor you already see — we'll ask by email.

Do doctors or hospitals pay to be listed?

Never. No doctor, hospital or company pays us, and we take no referral fees. You are our only customer.