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Your Specialist Report — Hole between the lower heart chambers (perimembranous ventricular septal defect, VSD) in a 4-year-old

Package: Before your surgery · Prepared for: the family of M., a girl, age 4 (sample report, fictional patient) · Location: Atlanta, Georgia · Insurance: employer PPO · Report date: November 2, 2026

1. What this condition is

M.'s cardiologist has told the family that she has a ventricular septal defect (VSD) that has not closed on its own and that she needs surgery to close it. A VSD is a hole in the wall that separates the heart's two lower pumping chambers. The "perimembranous" kind is a hole in the upper section of that wall (CDC, page dated Dec. 14, 2025). Because blood passes through the hole into the lungs, the CDC says a VSD "forces the heart and lungs to work harder." It also says small holes may close on their own, and that a VSD left unrepaired can raise the risk of heart failure, high blood pressure in the lungs and irregular heart rhythms. Surgery to close a VSD is usually one planned open-heart operation: the surgeon sews a patch over the hole while a heart-lung machine does the work of the heart. The national surgeons' registry places "patch repair of ... Ventricular Septal Defect (VSD)" in its lowest-risk group of operations, STAT category 1 of 5 (STS explanation page). Lowest-risk is not no-risk, which is why the questions in Section 7 matter. Your doctors will decide what applies to your child; this report helps you prepare for those conversations.

Questions many families focus on:

2. Specialists to consider

How we compared programs: the public registry. The Society of Thoracic Surgeons (STS), the surgeons' national registry, publishes congenital heart surgery results for programs that agree to it. STS no longer gives congenital programs star ratings. Its congenital pages now show, for January 2022 to December 2025, how many children died within 30 days or before going home, compared with how many would be expected for that hospital's mix of patients (the "observed-to-expected ratio," with a 95% range). STS's own reading rule: if the whole range is below 1, the program had fewer deaths than expected; if the range crosses 1, it performed as expected; if the whole range is above 1, more than expected (STS explanation). STS also warns that its results "are not intended for direct comparison to other participants," because each hospital treats a different mix of patients. MUSC says STS gave star ratings only from 2016 through 2020 (MUSC's statement, MUSC outcomes page).

STS public results, children's heart programs in Georgia and neighboring states, January 2022 – December 2025 (all ages and all congenital heart operations; distances are approximate driving miles from Atlanta):

Program (city, miles)PatientsDeaths vs expected (95% range)STS readingLowest-risk group (STAT 1) deaths / patients
Children's Healthcare of Atlanta (Atlanta)2,5670.80 (0.62–0.99)Fewer than expected8 / 1,255
Duke University Hospital (Durham NC, ~380)1,6870.41 (0.26–0.59)Fewer than expected4 / 739
Monroe Carell Jr. at Vanderbilt (Nashville TN, ~250)1,6841.23 (0.94–1.53)As expected2 / 845
MUSC Children's (Charleston SC, ~300)1,2950.92 (0.61–1.24)As expected2 / 596
Children's of Alabama (Birmingham AL, ~150)1,2320.99 (0.65–1.39)As expected5 / 599
Levine Children's (Charlotte NC, ~245)1,1270.92 (0.61–1.28)As expected2 / 640

Read from each program's STS page on November 2, 2026: Children's Healthcare of Atlanta, Duke, Vanderbilt, MUSC, Children's of Alabama, Levine. Children's Healthcare of Atlanta is the only Georgia program listed in STS public reporting. Hospital-published survival and volume figures quoted below are the hospitals' own figures: self-reported, not audited by us, and not comparable between hospitals.

We ranked by experience and public results first, then by distance. Each program has more than one congenital surgeon; we name the surgeon whose page or published work fits this situation best, plus a second name at the same office.

1. Subhadra Shashidharan, MD — Associate Chief, Pediatric Cardiothoracic Surgery, Children's Healthcare of Atlanta (in town)

2. Douglas Overbey, MD, MPH — Pediatric Heart Surgeon, Duke Children's (about 380 miles; a short flight)

3. Minoo N. Kavarana, MD — Chief, Pediatric & Adult Congenital Cardiothoracic Surgery, MUSC Children's Health (about 300 miles)

Closer to home (Georgia)

Leads we checked and did not list

3. Next steps

How to reach each specialist (from each institution's own page):

Your first call — three questions (no page we checked answers all three):
1. Is the surgeon seeing new patients with a VSD that needs repair? Dr. Turek's and Dr. Kavarana's pages suggest yes; the others do not say.
2. What is the wait for a first visit, and then for the operation? No page gives a wait time.
3. Is a referral needed? Duke's page says your child's cardiologist will most likely send the referral. The other programs do not say.

Your 3 steps this week:

  1. Ask the cardiologist's office for copies of M.'s latest echocardiogram report and images, the note that says surgery is advised, her latest EKG, and any MRI or catheter report. Ask them to write down the size of the hole, whether either heart chamber is enlarged, and whether any valve is leaking. Those lines are what a surgical team reviews first.
  2. Call Children's Healthcare of Atlanta and one program out of state. Ask the three questions in the box, and ask whether the surgeon will review the echo before you travel.
  3. Call your insurer, using the number on the back of the card, and HR:
  4. Is each hospital and the surgeon's group in network? Anesthesia and the heart-lung machine team often bill separately.
  5. How does the plan cover a planned operation in another state? (Some plans use a national partner network; ask for its name.)
  6. Is prior authorization needed, and who files it?
  7. Is there a travel or lodging benefit for surgery far from home?
  8. What is our out-of-pocket maximum, and when does the plan year reset? This matters if the date might fall near the reset.

Two federal rules worth knowing. The No Surprises Act protects you from unexpected out-of-network bills for "non-emergency care related to a visit to an in-network hospital" (CMS). It does not make an out-of-network hospital you choose cost the in-network price. Job-based plans cannot set a lifetime dollar limit on essential health benefits (HealthCare.gov).

4. Stories from families who have been there

We found no public account of a 4-year-old's VSD repair at these three programs. The closest real accounts:

  1. Family blog, Atlanta (the Jacobs family, Children's at Egleston, February 2011) — Riley, 5 months old and born with a genetic condition (22q11 deletion), had her VSD closed on February 25, 2011. Her mother posted her list of questions for the team before surgery. On the day she wrote that it took about 2 hours of a planned 4 and that the team was "almost 100% sure that she won't need a pacemaker"; the breathing tube came out that evening. On day 4 Riley had fluid in her lungs, a fever, and "a little leakage through or near the patch," which the team had said might happen. Tone: frightened, then relieved. (Her surgeon has since left Children's; see Leads.) January 2011 posts · February 2011 posts
  2. Local TV news, FOX 5 Atlanta (August 12, 2015) — Savannah's large VSD was repaired at 4 months at Children's at Egleston in December 2014. Her father had a hole between the upper chambers repaired at age four at the same hospital about thirty years earlier. Eight months later she was "walking, eating and acting like a typical toddler." Article
  3. Hospital story, Duke (promotional, 2024) — Giselle, 8, from Winston-Salem, had a large hole between the upper chambers. After a video visit with Dr. Overbey, her parents chose the smaller lower-breastbone incision over robotic or full open surgery. She went home after two nights and started fourth grade weeks later. Duke story

What these stories add: a small leak around the patch can show up early; heart rhythm is checked right after surgery, which is why families ask about pacemakers; incision options differ by program; and a first meeting can happen by video.

5. Ready-to-send messages

Email or patient-portal message to the surgeon's office (copy, fill the brackets, send):

Subject: New patient request — 4-year-old with VSD needing repair — records review
Hello, I am writing about my daughter, [name], age 4. Her cardiologist in Atlanta has told us she has a perimembranous ventricular septal defect that needs surgical repair.
Dr. [name]'s experience with congenital heart surgery is why we are contacting your program. Could you tell us:
(1) whether Dr. [name] is seeing new patients for VSD repair, (2) the current wait for a first visit and for surgery,
(3) whether a referral is needed, and (4) how to send her echo images and reports for review, and whether a video visit is possible before we travel?
We would also like to know how many VSD repairs the surgeon does each year in children her age.
Our insurance is [plan name], an employer PPO. Thank you, [name, phone]

Phone script (what to say in the first 30 seconds): "Hi, I'm calling to request a new patient appointment with Dr. [name] for my 4-year-old daughter. Her cardiologist says she has a VSD that needs surgical repair. Is Dr. [name] seeing new patients for this? What's the wait? Do you need a referral, and how do I send her echo images before a visit? Can the first visit be a video visit? We have a [plan name] PPO; is the surgeon's group in network?" Write down: the person's name, the date, the answer, the next step.

6. One-page summary to bring to the appointment

Print this page and fill it in before each visit.

7. Questions to ask the specialist

  1. How many VSD repairs do you personally do each year in children over age 1? And your team?
  2. What results do you see for children like her: how often is a small hole left around the patch, and how often does it need another procedure?
  3. How often do children need a pacemaker after this repair at your center? How is her heart rhythm watched after surgery?
  4. Which incision would you use for her (full breastbone opening or a smaller lower cut), and why?
  5. Who will do the key parts of the operation? Will a surgeon in training (fellow) take part?
  6. Is any valve near the hole affected, and would anything else be repaired at the same operation?
  7. How long is the wait for surgery, how many days in the hospital, and when can she go back to preschool and play?
  8. Can follow-up visits and echoes be done in Atlanta with her own cardiologist?
  9. Who will bill us (hospital, surgeon group, anesthesia, heart-lung machine team), and are all of them in our PPO's network?
  10. What warning signs should make us call you or go to the ER, before or after surgery?

8. Your support after this report


This report is general information to help you find and talk to specialists. It is not medical advice, does not identify or confirm any condition, and does not recommend a treatment. Treatment decisions belong to you and your doctors. No doctor or hospital pays to be included in this report.

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